Title of the research project
Determination of the mutational signature of ionizing radiation using single-cell sequencing
Description

This research project aims to examine the mutational signature of ionizing radiation using single-cell sequencing techniques.

The project is using human lymphoblastoid cells donated by the Ashkenazi trio that have a well characterized genome. The cells are irradiated and sequenced to determine the mutations that are induced as a result of the exposure to the ionizing radiation.

Title of the research project
Asynchronous data federation for a multi-institutional patient portal
Description

A patient portal is an extension of an electronic medical record system that is accessible to patients. Although patient portals have been around for many years, they have had poor adoption in Canada. This is due in large part to the desire of provinces to invest in large centralized electronic medical record systems and the complexity of implementing such systems. But patients are demanding access to their medical data and do not wish to wait for complex centralized systems to be implemented.

  • Stacey Beard

    Undergraduate intern
    Medical Physics Unit
    McGill University

    Student
    Directeur.e(s) de recherche
    John Kildea
    Start date
    Title of the research project
    Asynchronous data federation for a multi-institutional patient portal
    Description

    A patient portal is an extension of an electronic medical record system that is accessible to patients. Although patient portals have been around for many years, they have had poor adoption in Canada. This is due in large part to the desire of provinces to invest in large centralized electronic medical record systems and the complexity of implementing such systems. But patients are demanding access to their medical data and do not wish to wait for complex centralized systems to be implemented.

    Therefore, in this research project, we will expand and evaluate the Opal patient portal, previously developed and implemented at the McGill University Health Centre, to function as a multi-institutional patient portal using a novel asynchronous data federation infrastructure.

  • Roxanne Caron

    Undergraduate intern
    Faculté de droit
    McGill University

    Student
    Directeur.e(s) de recherche
    John Kildea
    Start date
    Title of the research project
    Undertaking a Privacy Impact Assessment for a novel data donation platform based on the Opal patient portal
    Description

    This project is centered on the data donation aspect of Opal and will involve a Privacy Impact Assessment of the application and the eventual practice of data sharing driven by it.

  • Title of the research project
    Preparation of the Opal patient portal for widespread use at the Cedars Cancer Centre and for the addition of a caregiver component
    Description

    This project involves two components: (1) preparation of Opal for the caregiver functionality in which patients will be able to share some or all of their medical data with their caregivers, and (2) general content preparation for Opal.

  • Briana Cabral

    Undergraduate intern
    Medical Physics Unit
    McGill University

    Student
    Directeur.e(s) de recherche
    John Kildea
    Start date
    Title of the research project
    Preparation of the Opal patient portal for widespread use at the Cedars Cancer Centre and for the addition of a caregiver component
    Description

    This project involves two components: (1) preparation of Opal for the caregiver functionality in which patients will be able to share some or all of their medical data with their caregivers, and (2) general content preparation for Opal.

  • Romina Filippelli

    Undergraduate intern
    Medical Physics Unit
    McGill University

    Directeur.e(s) de recherche
    John Kildea
    Start date
    Title of the research project
    Privacy and confidentiality requirements for the use of a multi-institutional patient portal in Canada
    Description

    This project involves an examination of the regulatory privacy and confidentiality compliance requirements for the use of a patient portal in various Canadian provinces.

    Romina also works as a member of the quality assurance team, the market research team, and assisted with deploying Opal in numerous clinics within the Cedars Cancer Centre.

  • Kayla O'Sullivan-Steben

    Ph.D. candidate
    Medical Physics Unit
    McGill University

    Directeur.e(s) de recherche
    John Kildea
    Start date
    Title of the research project
    Empowered Patients, Informed Research - A pilot project for radiotherapy data donation using the Opal patient portal
    Description

    This research project is focused on preparing a pilot project for the donation of radiotherapy data by radiotherapy patients using the Opal patient portal.

    This project is investigating ways in which patients can share their data and it will put in place the infrastructure for a demonstrative project.

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