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Curation Community Call: Research Consent and Data Curation

Présenté par

Le groupe d’experts sur la curation (GEC) du réseau Portage

En ligne

Activités de formation

The Portage Network's Curation Expert Group (GEC) invites you to its virtual meeting on research consent and data curation!

These sessions are organized by the GEC to establish a link with the broader sector of research data management and curation.

This meet-up will focus on the theme of Research Consent and Data Curation with a presentation from Victoria Smith, the Policy, Privacy, & Sensitive Data Coordinator at Portage Network. This session will include: 1) a quick introduction to research consent; 2) a summary of different models of consent; and 3) a discussion on consent language specific to data sharing including a review of the recommended consent form language from Part 3 of the Sensitive Data Toolkit.

They encourage participants to bring any examples of consent language they would like to discuss as there will be an opportunity for discussion and questions. The intention of this session is to improve curator confidence in interpreting and assessing consent language.

Recommended Reading:
Sensitive Data Toolkit for Researchers Part 3: Research Data Management Language for Informed Consent

Activities

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Featured project

Intraoperative analgesic treatment decisions based on the NOL index: contribution of a data-based approach to improve accuracy and relevance

Student member : Marzieh Ghiyasinasab

This research project is based on the analysis of massive data on the NOL index and other intraoperative clinical parameters used by anesthesiologists during surgery. These parameters help them make analgesic treatment decisions in a non-communicating patient under general anesthesia and in whom it is impossible to assess pain and analgesic needs by standard questionnaires performed on awake patients. 
First, the objective is to interpret the values of this index in relation to the decisions made by the clinician. 

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