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Curation Community Call: Research Consent and Data Curation

Présenté par

Le groupe d’experts sur la curation (GEC) du réseau Portage

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Activités de formation

The Portage Network's Curation Expert Group (GEC) invites you to its virtual meeting on research consent and data curation!

These sessions are organized by the GEC to establish a link with the broader sector of research data management and curation.

This meet-up will focus on the theme of Research Consent and Data Curation with a presentation from Victoria Smith, the Policy, Privacy, & Sensitive Data Coordinator at Portage Network. This session will include: 1) a quick introduction to research consent; 2) a summary of different models of consent; and 3) a discussion on consent language specific to data sharing including a review of the recommended consent form language from Part 3 of the Sensitive Data Toolkit.

They encourage participants to bring any examples of consent language they would like to discuss as there will be an opportunity for discussion and questions. The intention of this session is to improve curator confidence in interpreting and assessing consent language.

Recommended Reading:
Sensitive Data Toolkit for Researchers Part 3: Research Data Management Language for Informed Consent

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Featured project

Student member : Gabriel Couture

This project consists of establishing good practices in health data management and building a software infrastructure in order to apply them.

We have developed pipelines that allow daily recovery of brachytherapy treatment data in order to calculate and store their dosimetric indices in a database dedicated to research. These indices are essential for planning radiotherapy treatments and for estimating their quality.

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