Student
Directeur.e(s) de recherche
John Kildea
Start date
Title of the research project
PARTAGE - Investigating patient-controlled data sharing for real-world evidence using the Opal patient portal
Description

The PARTAGE project (Patients and Researchers Team-up and Generate Evidence) is a research project that is examining mechanisms to allow patients to securely share their clinical data with researchers using the Opal patient portal. As part of the overall PARTAGE project, this specific sub-project is about obtaining stakeholder feedback on the concept of data-sharing. To do so, we are using a process of stakeholder co-design in which patients, clinicians and researchers are embedded in the research team and we are obtaining additional feedback from each stakeholder group through focus groups and surveys.

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